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November 25, 2003
Huntington's & Children
A new study found that 3/4th of Briton's would not have children if they knew they carried a genetic disorder such as Huntington's Disease.
This isn't surprising.
I just finished talking with a friend who, as she puts it, got "fixed" because of HD in her family. Since then, she's found out that she also has the disease and while she's glad she made that decision...it still hurts her to know she won't have a family of her own.
Just one of the many 'hurts' that pHD'ers (persons with Huntington's Disease) carry around...and tell almost nobody.
Posted by Dave at November 25, 2003 08:52 PM
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Comments
My father was diagnosed at the time I was trying to get pregnant. The disease had "appeared" to have passed his father and we felt that we were safe from it. We weren't. I went ahead and had one child anyway. He is now 4. My doctor and I talked about it at lenghth and she told me that if God intended for me to have a child it would happen and if he didn't it wouldn't and to not worry because she sees a treatment before HD will affect me and most definitely before it would affect my son.
Posted by: Kathrine at December 16, 2003 12:34 PM
I wouldn't have had children if I knew for a fact that my wife had HD when we had ours. It's bad enough to watch your spouse die, but then you have to watch the children die too, then the grandchildren.
Posted by: Fred at May 3, 2004 11:24 AM
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