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March 19, 2004
When Is The Age Of Onset
If you have the HD gene, this study could make your life better or it can make it worse.
When some find out the 'average' age of onset for their CAG count they decide, at least on some level, that their life is over.
Whatever anyone's station in life, HD or not, if you decide your life is over...it is. When that happens that's a shame because "it ain't over until it's over".
Before reading this chart here are some important facts:
1. Onset for some will be younger. Sad, but true. but...
2. Life is NOT over at onset. Life expectancy is up to 25 years after onset.
3. Onset can come much later. Note the column for the oldest (max) age of onset for those in the study.
4. Exercise, creatine, fish oil, and taking your doctor's advice could add many healthy years. There is evidence that this is the case.
5. Several promising treatments are on the horizon, though still a few years away. You may want to consider saving for your retirement.
The higher and lower CAG counts are not included here because of the accuracy due to the small sample sizes.
CAG |
Ave Age Onset |
Max |
40 |
58 |
84 |
41 |
57 |
83 |
42 |
51 |
80 |
43 |
47 |
73 |
44 |
43 |
66 |
45 |
42 |
69 |
46 |
39 |
63 |
47 |
35 |
58 |
48 |
33 |
50 |
49 |
33 |
52 |
50 |
31 |
46 |
51 |
29 |
43 |
52 |
29 |
52 |
Posted by Dave at March 19, 2004 07:33 PM
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