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May 14, 2004
HD Article
Savannah Morning News has a great article on Huntington's Disease.
Read the article, but here is a few excerpts:
"A lot of our members have guilt that they may have passed it on their children. Many people can become suicidal," said Cindy Arnsdorff, co-facilitator of The Lowcountry's Huntington's Disease Support and Education Group.
"The reason you don't hear about Huntington's is because it is so draining on families providing the care. We often don't have the time left over to educate people about it."
Today, Cindy, 50, takes care of her 58-year-old husband and best friend who can barely walk and talk. "You don't get much back from a Huntington's patient when they are at the stage my husband is at," Cindy said. "But when you've had 20 good years you make that sacrifice."
Posted by Dave at May 14, 2004 02:31 PM
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