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July 20, 2004
Ethics, Genetic Testing, and Eugenics
I see this discussion crop up from time to time and I think it is a good one to have...How far does society go in prenatal testing? At what point does it become Eugenics?
The Kalamazoo Gazette reports on the 'Genetic Town Hall' put on by Johns Hopkins University. Kalamazoo is the third stop on a multi-city tour. I'm not sure if Johns Hopkins is 'preachin', 'listenin', or 'discussin' but this is a topic dear to the heart of the Huntington's Disease community. And it is certainly worth discussing.
My question, and there is no answer..."Do you chose to have a child that would be at risk for Huntington's if you believe a cure will happen before the child would become a teenager?" We used to believe that Huntington's was a death sentence. That may not be the case for our generation. So what do we do now?
Neither the questions or the answers are easy on this one and there is no simple answer for any parent. I just hope that we, as a community, do not treat those with the HD gene as 'less' than the rest of of us. The consequences would be tragic (and wrong).
Posted by Dave at July 20, 2004 06:39 PM
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