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September 18, 2004
HD Article
The Waynesboro Record Herald has a nice article on a young lady dealing with Juvenile Huntington's Disease. Check it out here. The excerpt:
Dianne is especially grateful for all the help the family received while Lora was a student at the high school.
"They adapted her schedule and assignments so she was able to graduate in 2000. We got so much help in finding out what was wrong with her."
When she was in ninth grade, Lora began to volunteer at the high school library during her lunch periods. She can still be found there Monday and Friday afternoons, filing cards in the card catalog, sorting books and working on the computer.
"She's such a help to us, and when the students see her - with her restrictions - they realize she's not allowing her disability to keep her from making a contribution," noted librarian Diane Strock.
"Lora's not staying home and feeling sorry for herself. She's helping us out and maintaining contact with her former teachers," Strock added.
Posted by Dave at September 18, 2004 11:43 AM
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Comments
This is not just a problem in Tijuana. It is happening here in (deleted by editor) by a respected HD advocate. Several years ago after writing (deleted by editor) to comment on one of his many articles. He approched me with a treatment for HD. His active sales efforts on Living Cells / Shark cell therapy was apauling. I did not expect to be approached by any one of his stature in the HD community with such a unvalidated line of quackery. His sales efforts Im sure include the HD community here in (deleted by editor) and abroad.
I saddens me to think that he has promoted this product to victims in search of hope.
He sits in a position in the Phoenix HD community that requires a truly unbiased opinion and should not be allowed to promote such products.
Posted by: Mark at September 20, 2004 10:31 AM
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