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October 28, 2004

HD & Flu Shots

This came up on the Hunt-Dis email discussion group.

Naturally the question of whether HD patients are considered part of the "high risk" group that should get flu shots. Marsha Miller called the CDC and "they confirmed that there was no intention of excluding Huntington's Disease patients from the list of the chronically ill. They suggested that we visit our the websites for our state health departments and see what their guidelines are, and then call for clarification.

I think we should point out to the authorities that voluntary movement, swallowing and coughing to clear secretions are impaired in later stages of the disease and that 51 percent of people with HD die of pneumonia (I got that figure from the HOPES site)."

Thanks for doing that Marsha!

Posted by Dave at October 28, 2004 08:59 PM

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